Saturday, December 24, 2016

That Time I Broke Santa

About a month ago, my son was reading Superfudge by Judy Blume. It’s told from the older brother, Peter’s, perspective and involves the crazy antics of his little brother, Fudge. It was so much fun sharing one of my childhood favorites with my son, giggling past bedtime because he couldn’t put it down. Then we got to “Chapter 10: Santa Who?” I thought since it was a book for kids, it wouldn’t blatantly say that Santa wasn’t real. Then I braced myself as he kept reading aloud. I remembered this book is intended for children older than my son. Children who already know the truth about Santa. Then it happened. He stopped mid-sentence, made that WHAT THE FUCK face, and said “WAIT. Santa isn’t real?”

I don’t lie to him about big things. We are a secular family and I do my best to encourage analytical thinking. This means I don’t shy away from tough questions. In fact, I never told him Santa was real. It’s something he picked up from other kids, so I let him believe. I knew eventually his critical thinking skills would kick in, and it would be a lesson in intellectual discovery, and all would be well. BUT JUDY BLUME FUCKED IT ALL UP. She planted the seed that his little mind wasn’t ready for. For the next two weeks he bombarded me with questions. I kept answering with more questions. “Well, what do you think?” “What makes sense to you?” And on and on. It got to the point that I was going to have to tell him, because clearly he was ready.

Here’s where Cousin Dick comes in. I have a second cousin who plays Santa every year. He’s the real deal. Seriously. LOOK AT THAT FACE.

That beard is real, people!
He’s amazing, yes? He had shared a story about a little girl who was doubting Santa and he was going to have a talk with her about how Santa is more of a feeling, an idea about love and giving, and not so much an old guy in a red suit. Grown-ups just use Santa to help explain those ideas to small children because sometimes it’s easier for them to understand that way. I told him about how my son is at that same point, and he offered to come over and have the talk with him.

I thought, “WOW! This is going to be so incredible! He gets to find out the real meaning of Christmas spirit from Santa himself! I better make some room on the shelf for that Mother of the Year award, because OBVIOUSLY.”

Cousin Dick came over in full Santa regalia along with his son, Robert, the elf. They walked up to the apartment ringing bells, ho-ho-ho-ing, the whole bit. My son answered the door and his face lit up. He didn’t care it was two weeks before Christmas, Santa was at his door. So they come in and have some friendly chit chat about being naughty or nice, then cousin Dick looks at me and says, “Should I go ahead and tell him the other special thing about Santa?” I should have stopped him. I should have aborted the mission. The kid could have figured it out later. But nope. I said “sure!” My cousin gives him a lovely talk, explaining that he’s not actually Santa, but Santa represents the holiday spirit. He tells him that giving isn’t necessarily about presents. Even when we feel have nothing to give, we can still give a smile, a hug, kind words. It was a beautiful talk, really. My son enjoyed it and understood.

After they left, something didn’t seem right. I asked my son if he was ok, and he said he was fine. But I’m his mom. I know better. “Do you need a hug?” Yep. Tears. I fucked up. He wasn’t ready. I explained to him that I thought it was time because he was asking so many questions. I am not going to lie to him. “I’m your mother, how can you trust me if I tell you lies?” I also said “I’m sorry.” He seemed alright after that. When his father got home, we sat at the dinner table together. He blurted out, “Cousin Dick came over and told me Santa isn’t real! How was work?”

The next morning I thought we were ok. It turned out he was just in between stages of grief. He reached the anger phase over his bowl of Cheerios. “If you hadn’t broke Santa, I would still believe!” Then in the next breath, “I can’t believe you let me live my WHOLE LIFE believing in Santa!”

Me: WHOA. STOP RIGHT THERE. I never told you Santa was real. It was just something you chose to believe. Not everyone believes the same things. Just like with God. (I have a gift for making things worse with terrible analogies.)

Kid: Wait. Is God real?!

Me: Hell, I don’t know! No one does!

Kid: Fine! Then I’m going to believe in God! 55%!

Me: OK. That’s OK. You can believe in God. My point is that I’m not going to lie. I don’t believe in God. Some people do. You believe what makes sense to you. Santa made sense to you so I didn’t stop you.

He sulked all the way to school. I came home and cried. I have never pissed my kid off this bad. His anger was spawned from genuine heartbreak. Damn, that is a crappy and powerful feeling. He got it out of his system though. He let me have it, and I deserved it.

A few days later, another mother at the school ran up to me at pick up and said, “I have the number to Santa! Let me give it to you and you can have him call!” She handed me the ad, and ran off to get her kid. I looked over at my son and said, “That might be fun. Would you like to call Santa?” He threw me the most “Are you fucking kidding me right now” face. Before he could answer with actual words (not that he needed to) I whispered, “We don’t need to call Santa. Santa’s our cousin and we already had him over, huh.”

And he smiled, with pride.

Sunday, January 31, 2016

Bing Bang Bong

spasticity [spas-tis´ĭ-te]
Definition: Spasticity is a constant and unwanted contraction of one or more muscle groups as a result of a stroke or other insults to the brain or spinal cord. Over time spasticity prevents the normal voluntary contraction of affected muscles.
I don’t recall if I’ve previously explained spasticity in my posts.  I am open about what I can and can’t do and try to explain what my struggles are like, but I should give you all a better idea of why that is.

I turned to Google for a decent definition of spasticity and found quite a few. I chose the definition above from because it’s simple, accurate, and I love that it refers to my stroke as an “insult to the brain.” Well no shit! You don’t say!

What it means is that when part of my brain was killed off by the insult, er stroke, the rest of my brain wasn’t sure how to talk to the right side of my body.  Some things it has figured out, some things it won’t communicate at all (paralysis), and yet for other things it won’t shut the hell up. Spasticity occurs when the brain won’t shut the hell up.  It keeps sending signals to the nerves (in my case, my shoulder, fingers, and toes) so they are constantly tightening without me even knowing it.  Imagine flexing your bicep as hard as you can and not letting it go to relax.  Hold it…hold it…yeah, like that…keep holding… for several years.  Do you know how difficult and painful it would be to force yourself to extend your arm after that?

I realize a medical professional would probably explain this much better and give you a far more accurate analogy. Despite how awesome I am, I am no professional.

The muscles in my shoulder are constantly contracting and tightening up.  As numb as I am, I do have some feeling.  It can be excruciating to reach for things, to let my arm hang at my side, and if you want to know just how many swear words are in my vocabulary, pull my arm back.  It hurts like a motherfucker.  I have a serious fear of getting arrested because of this.  Wait, what? MAN, YOU DON’T KNOW ME.

The best thing I can do for it is stretch.  Stretching doesn’t cure it, but it helps loosen the muscles just enough to ease the pain.  Gravity pulling on my arm makes it too hard to lift it well, so I have to lie on my back to get it moving.  I sometimes need someone else to help lift it when it’s an especially bad day.  The other problem area is my toes. They don’t hurt because I can’t feel them.  Winning!  As I walk, my toes start to curl under.  I don’t notice until I start stepping on my toes and falling over, launching me into Human Pinball mode. Human Pinball mode is when I ricochet back and forth between the furniture until I can safely come to a stop.  If this were a sport, I’d be a World Champion.

I have mastered the art of not falling.  That is not to be confused with the art of walking.  I walk, but I stumble; only I do it with grace and skill!  Bing bang bong, bouncing down the hallway I go without ever hitting the floor.  Like a ninja, I grab at tables and chairs and you don’t even notice I’m doing it!  Maybe you do and you just don’t say anything because you are polite and your mama raised you right, but still!  In these past four years since my stroke, I have only fallen – like seriously hit the floor – three times.

Two of these falls occurred within 48 hours of each other.

And those happened this week.

You could say I’m on a roll.  (You see what I did there.)  I’m laughing at myself right now, but the second fall was a bad one.  I completely ate shit.  There was a box of random crap that needed to go to the dumpster.  It wasn’t heavy; it weighed about the same as an empty cardboard box.  I figured I could at least get it out of my living room to just outside the back door.  Due to the drop foot in my right ankle, I use my hip and knee to kind of fling my foot in the direction I need to go.  I realize that doesn’t sound terribly efficient, but remember I’m a Master Ninja.  I got this. Well I did, until my dragging foot caught on something (chair leg I think) and sent me flying forward through the back door.  I took out the screen and everything!  My arms, which had been holding the box, slammed down on the metal, sliding door track and my knees took the rest of the impact.

Falling as a grown-up sucks.  It takes a minute for your brain to realize that your body has had the audacity to pull such bullshit. I mean, really. REALLY? I’M ON THE FLOOR? THIS JUST HAPPENED? Consumed with indignation, I forgot to breathe.  As I started to pant, I started to cry, partly from the pain but also because I was just so overwhelmed with that are-you-fucking-kidding-me-right-now feeling. 

My husband was still home, thank goodness.  He ran over to me, scared shitless, and tried to help me up.  I couldn’t talk yet, but he could see that I needed a minute.  I needed to just sit there on the floor and breathe and cry for a minute before attempting to get up.  Once I was up, I sat in the chair that had brought me down, and I sat there for a long while.

This is my normal.  I forget that my “new normal” means there is also this piece that sometimes feels crappy and comes crashing in my face with a rather aggressive, unfriendly reminder that I’m still not invincible.  If it weren't rough enough having thoughts that won't simmer down, now my brain won't stop talking to my muscles behind my back.  I am grateful that most of the time I get them to tone it down just enough to stop trying to kill me.  Eh, that screen door needs to be replaced anyhow.